What are Treatment Options for Retinal Detachment in 3 Month Old Infant?

November 3, 2010

I have a son of 3 months with a detached retina in both eyes on 5th stage. He had a surgery on 19th oct in his left eye, but I am told there is no hope to restore his vision. i have heard about stem cell treatment of stem cells, and retinal cloning. Can you comment on these options?

 

 



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23 Responses to “What are Treatment Options for Retinal Detachment in 3 Month Old Infant?”

  • harry

    I’m a middle class citizen, married, and a daughter who suddenly lost her hearing at 2 years. I did research on stem cells and found Dr Himanshu Bansal from Delhi Kalra Hospital as he 95% cured a USA citizen of blindness. I called him, and he was great, caring, convincing and to the point said his institute was non-profit and said to me money is not the issue. After meeting him, i decided to trust a fellow Indian, as i am indian. He mentioned 5 treatments to me at a cost of $5000, but he said money is not the issue, lets cure your child.

    My father booked my flights and hotel and we had to remortgage our house and borrow money. When we arrived at kalra hospital. He was nice and genuine, made us sign a disclaimer – which is probably normal for a procedure like this. When the procedure started, they used no anaesthetic, so placed needles into my daughters hands and did not plan it properly as when the cells were placed back, they removed the needle, and then came back and said, we forgot the VESL cells. So put my daughter through pain again. At the End he asked for $7000. I said to him, you mentioned $5000, he said, new patients are added to the system and lab entry costs. I didn’t have $7000 so my dad had to borrow money from a company in India to ChAPS to Bansal and i paid them back. At this point we went back to UK. I called Bansal and said i was not convinced and do not want to do the remaining 4, as the procedure was very unprofessional, dirty etc. Plus Surjeet kept on asking for tips and money for medicine, even though we paid for it. And we had a Calvin Collier and another patient contact me dying they left Bansal as he charged people $10,000 and $1500. No consistency.

    Bansal said he will do the next 2 procedures for $5000 total and he will cure my child as her cells were great. After he convinced us, we borrowed more and did the 2 treatments. Same issues again, and surjeet the same. I said i cannot afford another 2 and will come back in 6 months after raised more money. He again convinced he to come within 4 weeks as hitting the disease quicker would gain results. I told him i do not have money. This is where i think he took advantage of venerable people like me who are shaken. He told me to borrow the money again tom friends and family. He said he will gain results as he will come to UK later in year to give boosters where she will gain results. He even said every person that year who have had boosters have had positive results. The boosters are included in the price and he will come uk. I have this on email. So we went again on presumption $5000 for 2 more shots.

    Again, same procedure and pain. At the end Bansal asked for $10000. I said i only have $5000. He said that is not good as the group will take from his wage. He told me to get what i can now. So i went running around in Delhi, asking hotels for money etc. Eventually got another $2000 which i gave him and said i will give the $3000 when i earn it back. He said ok. As we were leaving Surjeet took us for 800 rupees for no reason – tips , leaving charge, bed charge etc. I tried calling bans but he never answered. l just paid and left.

    A month later, i checked my daughters back. There was over 40 needle marks. I was horrified but was thinking she will get boosters and be cured. He said he will come after 6 months as he wants to see if any results are gained. 9 months later or so, he never once emailed me or contacted to see how my child was. Only a email saying he’s having trouble cashing the travellers cheques and that he needs a letter. The he says he’s coming to uk and will give boosters. At this point i was low as the results were negative and unsure about boosters. He said he will cure her and boosters will work. I have this on email aswell.

    I waited for several months and no contact from him. At this point my daughter was in research program at the best hospital in UK. the professors there questioned why my child has 40 plus marks on her back. I explained everything. They were massively concerned as they said the procedure would not take over 40 needle insurgeons to do 5 shots. They said the Doctor probably wants the cells for his own use as they can be used elsewhere. we were horrified. Then they asked for the boosters and where are they. I said they are in a Lab in India which is a direct match to my child. They asked me to contact Bansal to get the boosters so they can check this and to see if it is placebos or actually matching cells- mother cells.

    At this point i contacted Bansal, saying his method has not worked and that i want boosters, and explained why i want them. He said no, he cannot give unless my child comes to India and has it done there. I said i want my money back then – or partial as i have paid for boosters which he promised to come UK and do. I told him he said he will cure my child, again he denies it all. One thing i will say, he did say to me 40-60% success, which i understood. But then, don’t say to me he will cure my child to gain more funds and say all patients who have had boosters have had success. He denies all and i said i have evidence. Then he said he tried to console me. Cutting the long story short……….. I told him i want my boosters (as to see if he is genuine or not). He will not give. And now i want partial refund. He’s not willing to give. At this point i have done my research on previous patients. I have 9 previous patients who have exactly the same problem as i do. They all mislead and over charged. Promises were given, but no results. Surjeet earning his on the side. 9 cases in 2 days. Latest is Connor. A TODDLER for eye problems. He spent $15000 after 3 treatments, left banal and went to Unistem as Bansal was interest in money and nothing else. Another USA person left bansal and went to Unistem and has gained a positive result. Theres the lady from Paris who spent $10000 per shot, then flew Bansal over to Paris to get boosters, ended up in no results. Theres calvin collier, theres james, rachel, bernies brother…. the list is getting more and more. Bernies brother and rachel had the same problem, exactly. However, Bernie was from China and Rachel from South america. Rachel paid for 5 shots around $15000, Bernie pais $10000 per shot. Where is the sense there. I have all this info as i have met 3 of them in India and through forums, and others through them. All say the same. Bansal is a fraud.

    Ok, we may be upset with no results, but I’m not angry that no results were gained. Im angry as i now believe, Bansal did not do what he said he would. Even to this date, i want my boosters, but he will not give unless i apologise and come to India. Im not apologising. I said to him, mu father lives in India and he can collect the cells. He never replied, because he won’t allow it. he has something to hide.

    He has really upset me. With the information i have now, i am making my finding aware to people who are thinking of going to see him. I will put all my findings on forums and internet sites. My father said he will investigate in India if he has gone against procedures etc, and if we can have his licence revoked. I told Bansal, i will close this argument if you give the boosters. He said he will not.

    Harry from UK

  • abbey

    my 5mos old baby was diagnosed to have retinal detachment my question iswhenmybaby waa delivered in hospital they didnt tell me that there is microopthalmia if they told me the day my baby born that the size ua abnormal for sute i will ask opinion and my son will be seen by good opthalmologist. but they give me cert that both eyes are okay…

  • Siraj Karimi

    Dear All , Its very unfortunate that this retina detachment treatment is not there for our kids . i have 5 months old kid was confirmed with retina detachment in both eyes and doctor told that only right eye can be operated and there is no hope for left eye we went to numbers of doctors to find treatment finally he was operated by Dr subhadra Jalali in Hyderabad India. But still no sign of vision only light perception in right eye. Other alternative treatment which we found were Homeopathy , Ayurveda , Magnetic treatment and stem cell treatment. We have met Dr Praful Vijaykar Practing Homeopathy in Mumbai he has significantly shown us the result for treatment in retina detachment but only 3 out of 10 patients were benefited from his treatment we are currently taking his treatment.
    http://www.prafullvijayakar.com/ Secondly we found Ayurveda they have also shown some improvement for retina detachment but there also 20% patients are benefited http://www.sreedhareeyam.com. Magnetic therapy is not benifited still long way to go for this treatment. Lastly Stem Cell Treatment this is really our big hope for our kids i have gone through number of doctors cases met many of doctors and some are very hopeful for this treatment . just go through the cases of Dr Himanshu Bansal.
    Stem Cells bring back vision to NRI (Chennai – LifeCell International
    http://www.lifecellinternational.com)
    And also another institute in New York USA http://www.nyee.edu One major break through in the stem cell treatment . http://www.medicalnewstoday.com/articles/228805.php Just go through this link. Don’t lose hope in any case .. All the best

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