Is Valtrex Helpful in Treatment of Acute Zonal Occult Outer Retinopathy?

October 23, 2010

A small study in AJO demonstrated a nice response to Valtrex in these AZOOR patients. This suggests that the Herpes virus is indeed the culprit. Although AZOOR is rare, a larger, prospective study might be nice.

 

 



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28 Responses to “Is Valtrex Helpful in Treatment of Acute Zonal Occult Outer Retinopathy?”

  • Cynthia Smith

    I forgot to mention that I had to supply my vision fields since my AZOOR began, which my regular ophthalmologist easily faxed over. I also had to have a CD made of my 2014 OCT and then used FEDEX to send that. They didn’t ask for my MRI. I don’t know what tests will be done; just the usual 3-4 hour window the doctor gives himself.

  • Cynthia Smith

    Dr. Ari,

    My experience thus far at the U of Iowa is hard to summarize. Connecting with Dr. Mahajan and Dr. Stone was an important thing for me to do. Not all of the staff has heard of AZOOR. And, I arrived at their doorstep without a direct referral from another doctor. I referred myself. I introduced myself to Dr. Mahajan via email and as things went along I dealt with Dr. Stone’s nurse. The 2 doctors picked the doctor I am about to see.

    I was determined, polite, and clear about my reason for going there. I want the valacyclovir. I read the 2 doctor’s report and understand the experimental nature for ophthalmology. I referred to the report often.

    Cynthia

  • Cynthia Smith

    Dr.Ari,

    Thank you again for being heard. I hope that I am a good patient. I know that ophthalmologists are not experts in autoimmunity or virology. When you have AZOOR, you are scared because of the visuals and how you feel. The visuals are as Dr. Gass, et all described. (Bubbles, Bursts etc.) I would crawl to Iowa for relief. My husband and I are driving…5-6 hours one way. We have a hotel near the U of Iowa.

    Best,

    Cynthia

  • Cynthia Smith

    Dr. Ari,

    I have read that a virus is capable of fooling cells into autoimmune reactions. So, it is a fact that a virus can do that and more.

    I understand that ophthalmologists are not all up on the latest viral studies and are not virologists. Therefore, that very important point is missed.

    Cynthia

  • Cynthia Smith

    Dr.Ari,

    I am the same Cynthia Smith from April 18, 2016 and August 5, 2016. I want to thank you for this website. You care about us and less about yourself. I am old and have seen many things in my life. I continue reading about AZOOR and the AZOOR (AZOR) constellation. I think it is important to know where one is in relation to its many facets. Most doctors don’t know what they are doing. It is sad.

    Cynthia

  • Cynthia Smith

    Dr. Ari,

    To make a long story short, I was unable to see either Dr. Mahajan or Dr. Stone at the University of Iowa because they are doing research until about February of 2017. I was assigned Dr. Sohn and will see him in September. I will let you know how things go.

    Best regards,

    Cynthia

  • diane m

    I have been diagnosed with AZOOR, and losing my periphery very rapidly. Im praying it doesn’t move to my center vision. Ive understood that its unlikely. Have you ever known anyone to lose complete vision with AZOOR? I see Dr Lee Jampole at Northwestern Eye Center in Chicago who diagnosed me right away. Is Valtrex a type of immunosuppressant?

  • Cynthia

    I have spent hundreds of hours reading about AZOOR and would like to find someone as knowledgable t talk to. I am not a doctor, so all of the test jargon is beyond me. I do understand the syndrome. When I ask questions I am pooh-poohed as being a worrier because I am in one eye and still occult. In my most recent conversation I was told only to come back when he can see something. He obviously is unfamiliar with Gass’ number 13. Needless to say after that and his refusal to consider valacycliver for me – even later on- I will be finding a new doctor. Comments, Dr Ari? I have had AZOOR since Jan.2014. I have chronic photopsia and am aged 63.

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