Is Stem Cell Therapy Available to Treat Retinopathy of Prematurity?
July 28, 2010
I would like to konow if there is any self stem cell therapy available for retinopathy of prematurity? My six year old son has lost complete vision due to ROP (stage 5) in both eyes in his third month. I am living in India.
Comments
Jump down to form below to submit your own comments
41 Responses to “Is Stem Cell Therapy Available to Treat Retinopathy of Prematurity?”
I have a 3 year old son who was diagnosed with ROP (stage 5) 4 months after being discharged from hospital. The Opthalmologist failed to follow protocol in doing the necessary screening with a premature baby born at 27 weeks, He has 5% vision on his left eye and lack the necessary motor skills like speech to carry on his daily life. Can I please have some ideas on how best to manage my baby. I recently had an MRI done which we are still waiting on results. Any kind of feedback will be greatly appreciated.
my child 3 months old premature born. Is diagnosed as stage 5 rop with both retina detached. .it’s still heart stabbing that my child lost vision just because of negligence. is there any treatment .any surgery anything dat can bring my son’svision back? ???Anxiously waiting for ur feedback. I m living in islamabad pakistan
would like to konow if there is any treatment available for retinopathy of prematurity? My new born three month old son has lost complete vision due to ROP (stage 5) in both eyes in his third month. I am living in India.
hi , my 4 months baby is suffering from rop stage 5 on his left eye went for several retina expert doctor but no body is granting for vision even aiims is denying for surgery. can surgery help little bit on vision ? n how come the growth of left eye vll be done , as i m middle class has very little , dont know what to do ? kindly help with your advice.
Wow, I always felt like I was in this world alone with my ROP child. He was a 24 weeker and at 2 months we found out he was at a stage 5. He is 11 now and knows no different. I would do anything for him to have sight. I pray every night for a cure.
I am From Pakistan , My twins Premature ( 7 Months ) baby boys were born 5 and a half Months ago , One of the babies is perfectly Ok , The other one had Deviation of Eyes problem , We consulted an Eye Specialist and Doc suggested for B-Scan , the B-Scan report is as under ….
Right Eye shows Total closed fixed fibrotic retinal detachment
Left Eye shows anechoic vitreous. Retina is in situ. Choroid is normal. Optic nerve head shows normal tomographs.
Extra-ocular muscles, retobulbar fat and optic nerve show normal tomographs (BOTH orbits)
so is there any hope ???
is that stage 5 of ROP ?????
can any one plz help me with this information ???
Hi my son is one year old with ROP STAGE V in both the eye. Doctor says no hope for normal eye sights after operation also. Can anyone advice the best ayurveda treatments. Appreciate if anyone cured by ayurveda treatment. Now he is able to see only tourch light . can any one help me to save his life of vision.
Hi, my daughter is a case of Rop. Her left eye has no vision due to stage 5 and her right eye has a high spex no. She has faced a blood clotting problem 6 months back..and she is facing the same again. Being Rop can she do any sports. Is it risking swimming
again- stem cell treatments are experimental. please check out stem cell section for study centers
Vasanth on January 26th, 2011 mentioned about the “The Ayurvedic Eye hospital (SREEDHAREEYAM) “.
I would like to know if there is really any hope here.
My niece is 4 years old (ROP Stage 5). She was operated at ‘Sankar Netralaya’. But it was unsuccessful.
Please let me know.
Thanks,
Gauri
myopic astig is not a genetic disorder and is not treatable with stem cells. i recommend glasses/contact lenses
My grandson aged 6 years has myopic astigmatism. As advised his treatment is possible only by laser treatment after he attains an age of 12 years.
My daughter is in very advance stage of 2nd child birth and we have consulted multiple stemcell collector here in mumbai. But non of them have come out with a convincing statement as to whether Myopic Astigmatism cure is possible.
As informed this is a Genetic disorder, so whether Stem cell collection during second child birth shall be effective.
Please Please respond to my E Mail if there is a hope.
if you have money to burn, then i guess its not a waste of money. thailand most certainly does not have stem cell technology that is not available elsewhere in the western world. good luck….
My son was born in December 2006 at 24 weeks. He had no problems except ROP. He underwent laser surgery at 3 months and is now legally blind. We are going to Thailand for stem cell treatment as soon as we raise enough money! I’ve seen comments on here that it’s a waste of money. I believe that even if it helps a little it’s NOT a waste of money! You can follow his progress on our fundraiser page if you’d like. http://www.youcaring.com/medical-fundraiser/helping-justin-see-his-future-/58229 If that link doesn’t work properly go to youcaring.com and search Goleman.
nothing is available. sorry.
i am a teenager who has stage 5 ROP and i am blind in my left eye i wanted to know if any treatments were available to give me sight in that eye ( my right one has sight) i went through cryotherapy when i was a child
Hi, we live in the Czech Republic, Europe. Three years ago our family has adopted a 16 years old girl with ROP in both eyes – for many years she has no light sensitivity. Like many others in this discussion I also hope that in future stem cell will we able to improve her vission. BUT regardless possible treatment in future I would like to encourage the parent of young children with a risk of complete blindness. The life of our daughter and other blind children that we have met in her school and their club could be as happy as other children. She experiences all the problems, happiness, loves and hates like other teenagers. She is doing so good with computer, she is “watching” films (as she says to hearing films), she read so quicky with tactile books, she skies with us in winter (both cross country and down hill skiing) or skates with us on the lake. In summer she enjoys swimming, riding a double bycicle, or just hiking with us. She also loves singing and she si just starting her 1st year od studies of popular singing at Prague Conservatory. Before we met her and before we decided to adopt her into out family (we have 3 other healthy children) I have alwas thought that blind people’s life must be very sad – but now I know that’t not true. I wist the best to everyone. Filip
Hi i hav a 50days old baby boy with rop stage 5 his vision is probably 2 to 5 percent we hav been reffered to shankara netralaya for surgery can anyone tell me what are the chances that he gets atleast 59 % vision?% PLZ ANS WE DONT WANT TO.BE LATE
i have also a 5 years old boy born premature, we found out about his ROP when he was four month old with stage 4B ROP…. he got diagnosed at Egypt and his doctor recommended either to travel to USA Detroit – Dr. Michael Tracy or to Belgium- Dr. Carl Claes… and we did travel to Belgium and dr. claes is absolutely wonderful my son did his surgery on his left eye …. but as you all know the results were limited and he has a poor vision on his left eye… he wears a contact lens on his eye and we do eye patching as much as we can as an attempt to keep this eye working and avoid lazy eye…. i try to follow up with dr. claes from time to time hoping if there is any new treatment…. we also keep on following up with his Egyptian doctor Dr. Hany Hamza and i asked about Stem cells treatment which he informed me that there is no scientific evidence of curing ROP with stem cells at present… I hope from God that there will be a cure for our kids … so what i recommend is keep on looking and searching until we find something….
Hi All,
I have done lot of research on ROP related treatments. No specific and promised treatment available as of now in the world. I also enquired with Bieke Biotech. But, could not find promising results. They have no answers to my questions on ROP treatment.
One thing we need to understand, Surgery need to be performed ASAP after retina is detatched. My kid has ROP stage 5 and we found this after 6 months of her birth. Neonatal doctors who treated didn’t tell us about ROP scanning, nor they didn’t perform any eye related scanning as far as i know . It is nowhere metioned in her discharge report. If the time period increase after detatchment, surgery also won’t help to a good extent. I contacted Bieke biotech, and talked to one doctor who is actually involved in stem cell treatment. I asked him several questions. But, did not get correct answers. He is always saying this is a new treatment. But, they cannot guarantee on the results.
I am waiting for something would come in the future as researchers progressing to create retina tissue with stem cells to transplant. Let’s wait and pray till some good treatment comes up. Don’t waste your money on any unproven methods.
Thank You,
