Paris Researchers Set to Undertake Major Study of Susac’s Syndrome

December 2, 2011

SUSAC’s Syndrome (SS) is a rare disorder characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with SS, mostly young women, have been reported. Depending on the severity of the case,¬†sufferers can exhibit personality change accompanied by often bizarre and paranoid behavior, and experience impaired speech, intense headaches and migraines, hearing loss, and impaired vision.

However, comprehensive epidemiological, clinical and etiological features of SS have never been specifically addressed so far.

An upcoming study in France is aiming to document the epidemiological, clinical, and etiological features of SUSAC’s Syndrome by having all SS cases retrospectively reported in France since the last 20 years, and all new cases prospectively observed, reviewed by a group of expert internists, neurologists and neuroradiologists who will validate each diagnosis. The hope is that the exhaustive and systematic analysis of each case will help to better define different aspects of the disease such as the incidence and prevalence, the clinical presentation, the diagnostic modalities and the impact of treatments.

Click here to read more about the trial.

 

 



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