Comments on: What Are the Symptoms of Charles Bonnet Syndrome?

By: ari weitzner

ari weitzner — Wed, 16 Mar 2011 03:30:57 +0000

i am not aware of anyone who specializes in this syndrome. all your mother really needs is reassurance that this is a well-known syndrome, and she needs to simply accept the hallucinations and not be frightened. any ophthalmologist or neurologist can sit and discuss with her

By: Lonzettte

Lonzettte — Tue, 15 Mar 2011 23:23:07 +0000

My Mother has macular degeneration (dry). She has had this for over 30 years. She has Charlie Bonnett Syndrome as well. She was even asked to speak at UNLV some years back about her experience with this. She shares with me her hallucinations and I try my best to be understanding. But it is difficult, especially when she questions me and wants to have lengthy conversations with me about what she sees and her conversations with people she sees. She has been checked for mental illness and was determined to be in perfect mind. Her visions started small…seeing letters in the field of vision that is not there…now she sees people. Does anyone know of someone who speciallizes in this area? Anywhere? Some who can help her and I understand this syndrome better? I’m beginning to feel frustrated….My mother lives with me now.

By: nystagmite

nystagmite — Tue, 20 Oct 2009 20:36:07 +0000

My understanding is that Charles Bonnet syndrome is the condition whereby your father gets visual hallucinations that he would recognise as unreal, so it does sound as if he does have it. It’s a condition typically of someone with advanced macular degeneration.

But the delusional stories are definitely “something else” – it would not be possible to say exactly what without a proper psychological assessment. Questions that occur to me as a mere lay person include does he drink a lot? (I mean alcohol). Does he have major gaps in his memory, especially recent memory? Is he maybe someone who’s always told tall stories to give people a laugh? Whatever’s going on, you can’t regrettably get a diagnosis over the Internet, so I hope your father can get a thorough medical and / or psychological assessment.

By: Dr. Ari Weitzner

Dr. Ari Weitzner — Tue, 20 Oct 2009 03:26:07 +0000

agree- the hallucinations are purely visual, as far as i know. other than that, one has to consider dementia or other organic brain disorder. the hallucinations are very real- the patient will swear he saw them

By: Randall V. Wong, M.D.

Randall V. Wong, M.D. — Mon, 19 Oct 2009 12:23:50 +0000

To me, Charles Bonnet Syndrome (CBS) occurs in individuals that have lost significant vision (legally blind or worse). They may experience visual hallucinations (seeing images in fine detail), but are of normal mental status.

How was your father diagnosed? I read your comment and wonder if your father has some dementia, but would suggest evaluation with his primary care doctor.

Look forward to hearing from you,

Randall V. Wong, M.D.
http://www.RetinaEyeDoctor.com
Retina Specialist